A night of hope: Children’s Ball raises over $2.6 million for life-changing research

The Children’s Research Fund hosted its signature event, “The Children’s Ball,” at the Hilton Chicago, drawing over 700 guests for an unforgettable evening of generosity and inspiration. Co-chaired by Mohan Rao and Maria Yen, the event raised more than $2.6 million to support Advanced Therapeutics at the Stanley Manne Children’s Research Institute at Ann & Robert H. Lurie Children’s Hospital of Chicago.

The evening began with a lively cocktail reception featuring a performance by the Middle School Jazz Band from the University of Chicago Laboratory Schools. The band led guests into the International Ballroom, where the decor reflected the event’s theme, “Color Outside the Lines,” symbolizing the creativity and innovation driving breakthroughs in pediatric research.

Event co-chairs Rao and Yen shared personal remarks about the challenges of raising a child with life-threatening food allergies and the exceptional care their family received at Lurie Children’s. Peter Bensinger, Jr., the outgoing chair of the Children’s Research Fund, delivered heartfelt remarks in his final address, reflecting on the organization’s profound impact.

One of the evening’s most powerful moments was a video highlighting 6-year-old Mason Flessner, who participated in a clinical trial at Lurie Children’s for Duchenne muscular dystrophy (DMD), a rare genetic disorder causing progressive muscle weakness. Under the care of Drs. Nancy Kuntz and Abigail Schwaede, Mason received ELEVIDYS, an FDA-approved gene therapy designed to slow the disease's progression.

The treatment has transformed Mason’s life. He can now run faster, climb stairs more easily, and even jump—achievements once out of reach. Mason’s 4-year-old brother, Dawson, who also has DMD, is awaiting qualification for the therapy. Their story moved attendees and was followed by a paddle raise that brought in over $500,000. These funds contribute to the Children’s Research Fund’s $9 million commitment to Advanced Therapeutics, an emerging field of biomedical research aimed at treating, curing, or even preventing diseases, offering hope to families like the Flessners.

Since its founding in 1951, the Children’s Research Fund has been a driving force behind advances in pediatric medical research. To date, the Fund has raised over $125 million to support groundbreaking research, transforming countless lives and pioneering new treatments for children in need.